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NIH Information Standards

Secure One HHS
Secure One HHS develops policies, procedures, and guidance to serve as a foundation for HHS' information security program. These documents implement relevant Federal laws, regulations, standards, and guidelines that provide a basis for the information security program at the Department. As Secure One HHS evolves, these documents will be subject to review and revision. Reviews and updates will take place at least annually, or when changes occur that identify the need to revise and improve Secure One HHS.

cancer Biomedical Informatics Grid (caBIG)
To expedite the cancer research communities' access to key bioinformatics platforms the NCI plans to deploy an integrating biomedical informatics infrastructure: the cancer biomedical informatics grid (caBIG). In partnership with the cancer research community, the NCI is creating a common, extensible informatics platform that integrates diverse data types and supports interoperable analytic tools. This platform will allow research groups to tap into the rich collection of emerging cancer research data while supporting their individual investigations.

Cancer Data Standards Repository (caDSR)
One of the problems confronting the biomedical data management community is the panoply of ways that similar or identical concepts are described. Such inconsistency in data descriptors (metadata) makes it nearly impossible to aggregate and manage even modest-sized data sets in order to be able to ask basic questions. The NCI, together with partners in the research community, develops common data elements (CDEs) that are used as metadata descriptors for NCI-sponsored research and for the caCORE applications. The caCORE objects are represented by UML Models. The UML Model is used to facilitate a semi-automated load from caCORE UML into ISO/IEC 11179 Administered Components. This is discussed in more detail in the Application Developers section. The caDSR is a database and tool set that the NCI and its partners use to create, edit and deploy the CDEs.

ISO/IEC 11179, Information Technology - Metadata Registries (MDR)
ISO 11179 is a standard for describing data elements used in databases and documents that specifies basic aspects of data element composition, including metadata. The standard applies to the formulation of data element representations and meaning as shared among people and machines; it does not apply to the physical representation of data as bits and bytes at the machine level. This standard is used as the basis for the NCI Common Data Elements.

Dublin Core Metadata Initiative
The Dublin Core Metadata Initiative is an open forum engaged in the development of interoperable online metadata standards that support a broad range of purposes and business models. DCMI's activities include consensus-driven working groups, global workshops, conferences, standards liaison, and educational efforts to promote widespread acceptance of metadata standards and practices.

NLM Communications Engineering Branch
Projects in the Communications Engineering Branch focus on R&D in image engineering: the capture, storage, processing, online retrieval, transmission and display of both biomedical documents (mainly journals) and medical imagery. The data repositories available from the NLM Communications Engineering Branch have been collected from a variety of sources. This collection contains digitized versions of radiographs and rare manuscripts. Data Repositories include the National Health and Nutrition Examination Surveys (NHANES) with collateral data and x-ray images.

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